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What Is the Life Span of People with Alport Syndrome

Provided by Expert Zhang Youkang on 2012-10-16 17:29

Alport syndrome is a genetic disease. As there is no cure for the disease, the patients are very concerned about the prognosis fo the disease and their expected life span. How long can people with alport syndrome live?

Alport syndrome is featured with inflammation of filtering units in kidneys, in which normal kidney structure is replaced by scarring tissues gradually. It can involve multiple organs including kidneys, ear and eyes. Generally speaking, women with this condition only have hearing lose and most of them can live a normal life and have a long life span.

Compared with women, men with alport syndrome have a poor prognosis. Most of men with x-linked alport syndrome will experience kidney failure in their 20s or 30s. If left untreated, eventually, they will have to require dialysis or kidney transplant to sustain life. In this case, their life span will be affected significantly. However, kidney failure may occur until ages 40~50. Besides kidney failure, many men may develop significant hearing loss and some may die of complications by their middle age. Most women will not develop obvious kidney damage. However, the risk of developing kidney failure will increase as they age.

Therefore, once you are diagnosed with alport syndrome, you should receive treatment at once to stop renal function aggravation and also avoid other potential risk factors.

1. As inflammation in glomeruli is a major dangerous risk in damaging renal function, the key to stop renal function decline is to suppress the inflammation in kidneys. Micro-Chinese Medicine Osmotherapy is an alternative therapy for alport syndrome. Chinese medicines are featured with anti-inflammation and can prevent further damage to kidney tissues and cells. Meanwhile, it can stimulate the regeneration of kidney tissues and cells to improve renal function. In this way, it can stop the disease from developing into renal failure.

2. Proteinuria and high blood pressure are two major risk factors in accelerating renal function decline. If the patients with alport syndrome can reduce protein in urine less than 1 g in 24 hours and blood pressure within 120/70mmHg, their risk of developing renal failure will reduce significantly and their life span will be prolonged.

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