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Medullary Sponge Kidney (MSK) Questionnaire

This questionnaire is aimed at providing some guidance for people with MSK, their family and friends. After you submit the questionnaire, there will be free and detailed analysis for your specific illness condition, which can help you better understand your current condition. We also provide suggestions on your daily health care, prevention and treatment. Do not forget to leave your email address here or we can not send the illness analysis to you! We agree with personal privacy protection and promise not to reveal your info to anybody.

Patient Information

1. Are you the patient with MSK?

Yes, I have.  No, I have family or friends with MSK.
2. Is the patient a male or female?

Male  Female
3. How old is the person with MSK?

Under 18 18-30 30-45 45-60 Over 60
4. How long has the patient been living with MSK?

Less than 1 year 1-5 years 5-10 years Not clear
5. What is the GFR or kidney function? (Not clear, test it now)

90-120 mL/min/1.73 ㎡ 60-90 mL/min/1.73 ㎡ 30-60 mL/min/1.73 ㎡ 15-30 mL/min/1.73 ㎡ Less than 15 mL/min/1.73 ㎡ Not clear
6. Discomforts or symptoms of the patient:

Nephrolithiasis (Kidney Stones) Urinary tract infection Burning or painful urination Repeated urinary obstruction Pain in the back lower abdomen or groin Blood in the urine (Hematuria) Fever and chills Renal insufficiency
Other symptoms:
7. Are there any complications?

Renal calculi Calcium deposits in the kidneys Kidney infection Abscess (pocket of pus) within the kidney Kidney Failure Wilms' tumour Distal renal tubular acidosis
8. What are the current treatments?

Antibiotics ESWL Shock wave Nephrolithotomy
Other treatments:
9. You can add more information that can be helpful for our analysis:

    Your Name: *

   Country: *

    Email: *

   Phone: (optional)

About Us

Unlike any other charity, we can offer a comprehensive menu of outpatient, hospital-based and Web offerings that enable use to provide the ongoing support for children and families--from diagnosis through the entire medical treatment course. We can help them relieve their pain and manage their illness better.